In this episode of the Autoimmune Campfire, hosts Helen and Nona engage in an insightful conversation about pacing and managing energy for individuals living with chronic conditions. They share personal stories and experiences, highlighting the challenge of adjusting expectations and managing daily activities in the context of varying energy levels.
The discussion introduces concepts like 'spoon theory' and 'units of energy', emphasizing the importance of presence, self-advocacy, and aligning activities with personal values and energy levels. The episode encourages listeners to embrace opportunities by attuning to natural rhythms and taking ownership of their energy management journey. Listeners are invited to self-advocate and find balance despite the unpredictable nature of their conditions.
00:00 Welcome to the Autoimmune Campfire
00:18 Weekend Recap and Personal Updates
02:51 Advocacy and Pacing
14:36 Understanding Energy Management
30:57 Spiritual Opportunities and Natural Rhythms
36:05 Conclusion and Final Thoughts
Connect with us
If you want to learn more about who we are and what we do or to work with us, please check our respective websites:
https://www.nonajordan.com/
https://www.helensamsonmullen.com
We are delighted to work with our wonderful producer, Richard Wilmore at
https://www.makeyourdayricher.com/
Additional Resources:
“All of us could benefit from asking ourselves how much is too much and heeding the call of our bodies to rest. However, people with CFS, fibromyalgia, long COVID, chronic pain, and other conditions are often required to ask that question with much greater urgency as they struggle to find energy to accomplish things the rest of us take for granted—like bathing, cooking a meal, running errands or even carrying on a conversation."
In the footnotes of the article was the research in RA Lancet's article on pacing with respect to RA:
https://www.thelancet.com/journals/lancet/article/PIIS0140-6736(11)60096-2/fulltext
And Article on Spoon Theory:
https://www.goodrx.com/health-topic/mental-health/spoon-theory
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